National Dysautonomia Research Headquarters
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National Dysautonomia Research Foundation - National Institutes …
- https://rarediseases.info.nih.gov/organizations/656
- National Dysautonomia Research Foundation. National Dysautonomia Research Foundation. P.O. Box 301. Red Wing, MN 55066-0301. Telephone: 651-267-0525. Fax: 651-267-0524. E-mail: [email protected]. Website: http://www.ndrf.org. Supported Diseases.
Dysautonomia - National Institute of Neurological …
- https://www.ninds.nih.gov/health-information/disorders/dysautonomia
- Definition. Dysautonomia refers to a disorder of autonomic nervous system (ANS) function that generally involves failure of the sympathetic or parasympathetic components of the ANS, but dysautonomia involving excessive or overactive ANS actions also can occur. Dysautonomia can be local, as in reflex sympathetic dystrophy, or generalized, as in ...
Dysautonomia-Information-Page - National Institute of …
- https://www.ninds.nih.gov/Disorders/All-Disorders/Dysautonomia-Information-Page/2772/organizations/1000
- The NINDS supports and conducts research on dysautonomia. This research aims to discover ways to diagnose, treat, and, ultimately, prevent these disorders. Information from the National Library of Medicine’s MedlinePlus Autonomic Nervous System Disorders
Dysautonomia International: Dysautonomia Awareness, …
- http://dysautonomiainternational.org/
- Dysautonomia International is a non-profit that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness and patient empowerment programs. Awareness …
Dysautonomia - Brain and Life
- https://www.brainandlife.org/Disorders/dysautonomia/organizations
- National Dysautonomia Research Foundation. Non-profit foundation established to help those afflicted with any of the various forms of dysautonomia. Provides a support network for affected individuals and family members by providing information on the various forms of dysautonomia, as well as providing contacts to other organizations that may be ...
Summary of the First NIH POTS Research Workshop
- https://dysautonomiainternational.org/blog/wordpress/summary-of-the-first-nih-pots-research-workshop/
- The workshop took place on June 29, 2019 at NIH headquarters in Bethesda, Maryland the morning after Dysautonomia International’s 2019 Conference in Philadelphia, which most of the POTS experts had participated in.
Privacy Statement for National Dysautonomia Research …
- http://ndrf.org/policy.htm
- The following discloses the information gathering and dissemination practices for this Web site: National Dysautonomia Research Foundation (NDRF) Information Automatically Logged. We use your IP address to help diagnose problems with our server and to administer our Web site. Your IP address is also used to gather broad demographic information.
NDRF
- http://www.ndrf.org/
- Dysautonomia is a general term used to describe a breakdown, or failure of the autonomic nervous system. The autonomic nervous system controls much of your involuntary functions. Symptoms are wide ranging and can include problems with the regulation of heart rate, blood pressure, body temperature and perspiration. ... Research studies provide a ...
Dysautonomia Youth Network of America, Inc.
- https://www.dynainc.org/
- Welcome. Founded in 1999, the Dysautonomia Youth Network of America, Inc. (DYNA) is the first and only 501 (c) (3) non-profit organization in existence specifically dedicated to childhood/adolescent/young adult onset dysautonomia conditions. While our office is based in the US, our services are open to the world.
National Institute on Disability and Rehabilitation …
- https://www.nidcd.nih.gov/directory/national-institute-disability-and-rehabilitation-research-office-special-education-and
- Administraction for Community Living, U.S. Department of Health and Human Services, 330 C Street SW, Room 1304. Washington, DC 20201. Voice: (202) 795-7398. Fax: (202) 205-0392. Email: [email protected]. (link sends email) Web Address: https://acl.gov/about-acl/about-national-institute-disability-independent-living-and-rehabilitation …
Patient Advocacy for Autonomic Disorders
- https://www1.rarediseasesnetwork.org/cms/autonomic/Get-Involved/Patient-Advocacy
- The National Dysautonomia Research Foundation (NDRF) was established to assist those who suffer from any of the various forms of Dysautonomia. On the Web: www.ndrf.org . Defeat MSA. Defeat MSA aims to increase AWARENESS, ALLEVIATE suffering and ADVANCE research toward the cure for MSA! Defeat MSA’s mission is four-fold:
Dysautonomia Center Research - NYU Langone Health
- https://med.nyu.edu/departments-institutes/neurology/divisions-centers/autonomic-disorders/research
- The Dysautonomia Center is the leading site for research on and treatment of familial dysautonomia (FD). Our research program is supported by the Familial Dysautonomia Foundation, Inc. , and we receive grant funding from the National Institutes of Health (NIH), the U.S. Food and Drug Administration (FDA), The Michael J. Fox Foundation for Parkinson’s Research, and the …
Resources for Autonomic Disorders - Rare Diseases Clinical …
- https://www1.rarediseasesnetwork.org/cms/autonomic/Learn-More/Resources
- Dysautonomia Foundation, Inc [ web site] The Dysautonomia Center at New York University Medical Center works in close collaboration with the Dysautonomia Foundation, a public charity founded in 1951, shortly after familial dysautonomia (FD) was first identified in the United States. The foundation is the main supporter of the Dysautonomia Center.
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